Thank you for the first donation
First off, I’d like to thank my first donator. I hope you don’t mind me using your name, but Crystal Fuller got the ball rolling. Thank you so much for your kindness. I can’t tell you how blessed I feel by your generosity.
I also want to thank the people who have sent me messages through Go Fund Me. I appreciate your concern and prayers. And I’d like to alleviate any misunderstandings of why we can’t take advantage of the free Hospice facilities. We are using the Hospice of East Texas out of Tyler. She has been accepted into Hospice At-Home Care with them. It’s not very convenient because it takes over an hour for the employees to get to her home but we were told they’re the best.
A Little Background Info
In 1988 before my grandpa died from asbestos poisoning, he made sure that his wife would be taken care of for the rest of her life. It’s not much, especially since he died in the 20th century when the cost of living was so much less expensive than it is today. But it was enough to pay her bills until she dies, which are low. There’s also enough to cover some medical needs and her burial.
She wants to be buried next to her husband at Old North Church in Nacogdoches, Tx.
He didn’t prepare for this though. He never would have imagined that her Medicare insurance for the elderly wouldn’t be enough to take care of her elderly medical needs. We all know how complicated insurance is these days. And we all know how little it actually covers.
Why Do We Need Donations?
I want you to understand what you’re donating for. My grandma does not qualify for Medicaid. She’s not rich. But the preparations her husband made to take care of her after he died, stop her from being able to qualify.
- We’ve had three social workers exhaust their options.
- My mom has researched her butt off and ran into the same obstacles as the social workers.
- We even spoke to a lawyer who also told us there’s nothing we can do to qualify.
She’s stuck in a Catch 22. Not poor enough to qualify for Medicaid, and not rich enough to pay for the facility. Without Medicaid, we just cannot afford the cost of a facility. In some locations the prices are a little lower and we wouldn’t be able to afford those lower prices either. In our area, we are looking at about $60,000 a year or more. I’m not sure how long she needs, but I’m guessing under 6 months.
What does Hospice Provide for Us?
- A nurse visits once a week.
- An aid visits only during the week once a day to clean her including the cleaning supplies.
- They provide medicine.
- We also get 5 days of respite care each month. My grandma gets transported to a nursing home, so that the family can get 5 days of rest. That’s what her insurance covers.
Paying out of Pocket
Since Hospice doesn’t send an aid out on weekends, we have to pay for that out of pocket. Just to give you an idea. We can only afford one hour for each day. At first, we were going to get 4 hours but we just can’t afford it. Maybe once or twice. But if we do that every single weekend we’re going to run out of money fast. So, we do the bare minimum.
If we pay for someone to give her pain and dementia medicine, we can’t even afford one time. Because she get’s it daily more than once and it’s over $100 for each time. So, that’s just not an option. It’s so important for her to be administered these drugs in a facility. We work hard to do it right, but we are not a substitute for trained professionals.
She also does not allow us to clean her up. She has incontinence and that is getting worse because it’s directly damaged by her handicap. Her handicap is located in her pelvis and legs and now her spine because the scoliosis is starting to spread.
Family as Caregivers
Her family is just me and my mom. The picture below was a gift my grandpa gave to his wife and daughter – a trip to Hawaii because she always wanted to go there. And they met Don Ho and had dinner together.
My grandma’s family is all gone . . . all of her siblings have died, except for one. But he’s elderly, out of town, and not available to help. She lost her younger sister who stayed in touch with her all the time through phone calls, mail, and she came to visit regularly.
She died the same year my grandma’s son died which was almost two years ago. Everyone knows how hard it can be for a parent when their child dies before them. And his children are dealing with his death and other health problems that just make it impossible for them to add more to their burden.
So basically our lives have stopped. We are doing nothing but caring for my grandma 24/7. I’ve abandoned my home. My work. My dad. My boyfriend. My friends. My godchildren. My own health and well – being.
My poor dog Sunny has been uprooted from her happy and stress free life in the country to being in town with loud town noises. She feels our stress and while she makes a wonderful therapy dog for us and for my grandma, it’s just taken a toll on her. And her breed is prone to getting a hole in the heart when they get older. The vet told us 3 years ago, because it showed up. I do my best to pray over her daily and always make sure she gets her walks and eats healthy.
I want her to live a long healthy life. But we are struggling to give her that extra love and care right now.
What Can You Do?
- Share the link with everyone you can think of.
- Donate what you can. $1, $5, $20. Whatever you can afford and feel comfortable with. Every little bit counts and adds up.
- Pray. If you can’t donate, I understand. But we always appreciate prayer.
I hope that helps everyone know why we can’t afford the Hospice care in a facility. Thank you for reading, sharing, donating, and praying. Sometimes we have to help each other out in this world where so many people are struggling.