Hospice Kicked Us Out

Thank God hospice kicked us out. At least the doctor said she’d still provide pain medicine. Apparently, my grandma was accepted into hospice because of dementia. Last I checked, hospice accepts you when you have 6 months or less to live. Dementia is not necessarily terminal in under 6 months. It’s called the LONG GOODBYE. You can live with it for a long time.

And when they refer to her handicap . . . they use air quotes . . . They say, “What ‘handicap’?”

No, it’s not “handicap.” It exists. She was born with it. Had it for 83 years. Walks with a limp and uses canes. And for an 83 year old, if it is left untreated as it was when she was in the medical “CARE” it becomes terminal.

It breaks down her digestive system. It causes her such intense pain. And all we asked was that they reduce her suffering caused by her handicap. Not to let us run out of medicine. Which they did over and over again. It didn’t matter how much we called or asked.

The aid who changed her diaper saw the pain. She was heartbroken. The weekend aid who isn’t apart of hospice noticed. She was crying. She couldn’t let it go. So, I don’t understand hospice.

I’m flabbergasted.

Feb. 18 this woman who was walking and aware, only went to the hospital to evacuate freezing temperatures. And she was given a death sentence by this corrupt organization. They had their records wrong from the very beginning. She never fell. They thought her “handicap” was because she had fallen. And dementia became the ONLY thing they could see. They ignored the one and only reason she is now bed ridden. The reason we called hospice.

She barely even has dementia. She has all her long term memories. She wasn’t leaving her keys in the fridge. Or forgetting how to dress. Or anything like that. She couldn’t keep track of the days so well. She actually kept track better than she gave herself credit for.

Her panic disorder in addition to being in her 80’s would cause her to forget short term things. But how is that dementia? It looks more like mental decline due to aging and stress and confusion caused by her panic disorder. It’s not that hard to understand. Well, it is pretty complicated. She probably does have dementia.

But that shouldn’t mean her lifelong handicap just vanishes.

I struggle to stay quiet during injustice. Especially, when my family member is being harmed. And after being yelled at so many times by hospice nurses, I finally started yelling back and calling them out on their injustices. And I promised my mom when they showed up today, I’d stay quiet and work on my drawing. And I did. Until she came and asked my opinion. And then I went off on them. It’s injustice. It’s inhumane.

But, I did at least lay down another layer of Inktense on this mushroom piece.