Hospice Kicked Us Out

Thank God hospice kicked us out. At least the doctor said she’d still provide pain medicine. Apparently, my grandma was accepted into hospice because of dementia. Last I checked, hospice accepts you when you have 6 months or less to live. Dementia is not necessarily terminal in under 6 months. It’s called the LONG GOODBYE. You can live with it for a long time.

And when they refer to her handicap . . . they use air quotes . . . They say, “What ‘handicap’?”

No, it’s not “handicap.” It exists. She was born with it. Had it for 83 years. Walks with a limp and uses canes. And for an 83 year old, if it is left untreated as it was when she was in the medical “CARE” it becomes terminal.

It breaks down her digestive system. It causes her such intense pain. And all we asked was that they reduce her suffering caused by her handicap. Not to let us run out of medicine. Which they did over and over again. It didn’t matter how much we called or asked.

The aid who changed her diaper saw the pain. She was heartbroken. The weekend aid who isn’t apart of hospice noticed. She was crying. She couldn’t let it go. So, I don’t understand hospice.

I’m flabbergasted.

Feb. 18 this woman who was walking and aware, only went to the hospital to evacuate freezing temperatures. And she was given a death sentence by this corrupt organization. They had their records wrong from the very beginning. She never fell. They thought her “handicap” was because she had fallen. And dementia became the ONLY thing they could see. They ignored the one and only reason she is now bed ridden. The reason we called hospice.

She barely even has dementia. She has all her long term memories. She wasn’t leaving her keys in the fridge. Or forgetting how to dress. Or anything like that. She couldn’t keep track of the days so well. She actually kept track better than she gave herself credit for.

Her panic disorder in addition to being in her 80’s would cause her to forget short term things. But how is that dementia? It looks more like mental decline due to aging and stress and confusion caused by her panic disorder. It’s not that hard to understand. Well, it is pretty complicated. She probably does have dementia.

But that shouldn’t mean her lifelong handicap just vanishes.

I struggle to stay quiet during injustice. Especially, when my family member is being harmed. And after being yelled at so many times by hospice nurses, I finally started yelling back and calling them out on their injustices. And I promised my mom when they showed up today, I’d stay quiet and work on my drawing. And I did. Until she came and asked my opinion. And then I went off on them. It’s injustice. It’s inhumane.

But, I did at least lay down another layer of Inktense on this mushroom piece.

It’s my life It’s now or never But I ain’t gonna live forever

People have always said that I don’t know what hard is. I’ve had a few hard things happen in my life, but y’know what . . . those people were right. I have always lived a very pampered lifestyle. And I don’t know what a hard life actually is. I have a sunny California, Full House, Brady Bunch existence.

Until now. Since 2009, I have taken on more responsibility with my grandma. Everything was always on my mom because there was nobody else there to help. Her brother didn’t help. He ran away because he just couldn’t handle it. He was a mechanic but he couldn’t even help her with her car. It’s broke down. And my mom was just drowning in it. She needed help. It’s too much for one person.

And her other grandchildren aren’t around.

Her grandson, who she always speaks so highly of, hasn’t called her. He hasn’t sent a card. He doesn’t help her with hard labor that men are supposed to do. He just doesn’t do the grandson things for her. She hasn’t seen or heard from him in so long she thinks he’s dead.

So, after 12 years of helping this woman to walk. To have positive thinking. To get her groceries. To clean her house. To do everything.

It’s ruined my life.

That’s why my artwork has suffered for the last decade. I try to work on my art, but I’m just trudging along. My Internet is here at my grandmas because it’s not available where I live. I decided to make it work though, so I can be here to help her and do my work. But her needs always came first. I’d sit down and get started working and BOOM. There she is yelling very sternly, “Morgana!! Do you have a minute?!”

That minute just becomes the whole visit and I run home stressed out of my mind. And then I’d just do it all over again.

I love to help people. Especially my own family because I believe family should stick together. Help each other and be there for each other. But now that she can’t even walk and her digestive system has shut down. And she’s so crazy. Everyday, it’s non stop crazy. And she’s killing me. My health is suffering. My well being is suffering.

I now understand what hard is.

I’m so exhausted. My poor dog threw up yesterday. My mom goes home to sleep every night, and I stay here with my grandma. And I like to have Sunny with me, but it’s just gotten too hard on her. I can’t do that to my dog anymore.

It’s just non stop abuse from her. She screams and yells around the clock. I don’t understand why my life isn’t important. Why is her 83 year old life as a bed ridden elderly person who has dementia, and who has a lifetime handicap that causes her 24/7 pain. Which Hospice outright REFUSES to acknowledge her handicap.

“WHAT HANDICAP?!” They yell.

We reply, “Uuh, the obvious one…”

Come on. She has one leg that’s shorter than the other. Her pelvis is twisted and tilted. How can you miss it?!?! The mean nurse even changed her diaper and my grandma was scared and in pain. But you know what they do? They ignore it. They yell at us. They get mad at the drop of a hat. They say they didn’t hear her say she’s in pain. You may not believe me. But it is happening. For months now, we have been abused by these people.

I cannot understand it. I can’t even get donations on her stupid GoFundMe.

None of my friends have shared it or even been that concerned for me. One friend offered to share on FB and I let him. That day I had a ton of views and a few emails. One email was my cousin yelling at me and accusing me of things. But did she offer to help? Did she share the link? Did she donate? Did she come visit her aunt and her grandma and offer love and support?

No, she didn’t. She just attacked me.

My grandma’s dear friend, who gives me so much anxiety said she’d share the link. And she knows a guy who raised money before. She didn’t share it though. Just days before the winter storm, she was demanding we give her grandma’s insurance card, credit card, and demanded my mom stay away while she takes her to the doctor.

WHAT?! I don’t know who she thinks she is, but her interference has caused me to have nightmares. But does she help? Did she use her resources to help her dear friend who she says she loves? No.

Another friend, known him since we were 12, said he’d share the link. So I sent it to him, but he hasn’t replied and I don’t see traffic on my blog or the GoFundMe. So, I guess he didn’t share it and I’m not gonna beg. He hasn’t been a true friend to me for at least 5 years anyway. So, I don’t expect him to be there for me.

I even sent the link to church people. I’ve known these people for a long time, and we only ever hung out during church events. So, where are they? Why haven’t they sent the link? Or donated a small amount? Or just called? Maybe they’re praying.

I just don’t matter. She matters more than two college educated women who have potential for greatness.

She matters more than my innocent dog who just wants to have the good life she’s accustomed to. My god daughter doesn’t understand why I NEVER come over. I tried to explain it, but she’s 8 and she knows that I will show up because I always do. And this time I’m not showing up. So, I guess she doesn’t matter either. She took it ok the first 4 times she asked. But the last time she called, her voice let me know she’s mad and hurt.

Right this minute my grandma is yelling, “Please kill me God. Please! Kill me God.” And she just lays there screaming and yelling. So, I have been able to draw a little bit. And I’ve been working on my photography some. I’m running out of steam though.

But, it’s just not important.

My life is officially over. I just take care of a crazy person who can’t walk. She can’t digest food properly. She’s in pain. She’s begs her only granddaughter to kill her. The stress is destroying me as each month goes by. Hospice wont show compassion and work with us. Her weekend aid had compassion. She was crying yesterday. She was off the clock and stood there crying and wondering why Hospice isn’t helping. If only Hospice would show the compassion that aid showed.

I read this article about this man who actually had help, guidance, and compassion from Hospice. Why can’t we have that?

That’s my life. Great. Now I can’t get this song out of my head. I don’t even like it that much lol.

There’s the art I did that doesn’t matter. The guy yelling like a Nazi is one of the nurses. He yelled at me. He’s the one who said, “What handicap?” Yeaaa, he is one of the people who is traumatizing me.

The cupcake and mushrooms aren’t done. I’ve just put a few layers of Inktense pencils.

And the top three pictures are of Sunny listening to my grandma yelling. The second picture is of Sunny’s throw up. And the third picture is my grandma’s leg. You see how theres no muscle? That’s the damage that was done by the nursing home who neglected her and put us in our current situation. At least I have lots of terrible stuff to document for some art series.

The Cycle of Life

Do you ever think about the cycle of life? 

I do. There are 12 Developmental Stages in the human life cycle. I’m in Stage 8, early adulthood. While my grandma is in Stage 12 death and dying. 

Those in our lives who are dying, or who have died, teach us about the value of living.  They remind us not to take our lives for granted, but to live each moment of life to its fullest, and to remember that our own small lives form of a part of a greater whole.  – Dr. Armstrong

That’s one reason why I’m so interested in the banal and just living a simple life. Because living in the moment is one of the best ways to fully experience the whole cycle of life. And we don’t have to wait ’till we’re dying to figure that out. 

Genesis 1-3 is so interesting to me, but I feel like there’s so much more to the story. So, I read it again and again hoping to get some more understanding about our creation. 

Tempted by Peer Pressure

That day in the garden when Eve was deceived by the crafty serpent and led herself and her man astray, that’s the day we were cut off from the tree of life. We had access to it and every other tree in the garden…except for that one tree…the tree of the knowledge of good and evil. And Adam wasn’t man enough to get control over his woman when she didn’t stand up to that serpent. 

Was she even listening to God when he told her how to handle the trees? When the serpent asked her “Did God really say, ‘You must not eat from any tree in the garden’?” She just carried on a conversation with the deceptive dude and he was much more clever. 

Instead of clarifying what God really said, she said something about not eating or even touching the tree in the middle or you’ll die. That answer right there opened the door for the serpent to beguile her. Why didn’t she just say, “Well, let’s just go ask God what He said.”?

Matthew 4 shows a good example of how to respond when being asked about what God really said.

Shame and Fear

Then when God asked them about it, they hid from Him, they lied, they made excuses, and they played the blame game. 

We were not ready for the responsibility of that kind of wisdom gained from knowledge of good and evil. Maybe one day we would have been but not yet. And now we’re stuck in a constant battle of good vs evil. In everyday life, in movies and in books. In everything.

Gustave Doré  Adam and Eve Driven out of Eden
engraving 1865

There’s some crazy stuff in the Bible, like some of the creatures God created. He cut us off from accessing the tree of life by placing cherubim and a flaming sword flashing back and forth. I’m assuming we’ll get access again one day, I dunno.

And I guess that’s why we have this fleeting cycle of life. We go through the aging process and die and return to the ground from where we came. And while we go through the aging process, I guess our society decided to make some bank.

Like Eve, I’m also drawn to wisdom. I think it looks pleasing too.

Wisdom

My grandma was telling me about how she’s had a hard life but she loved it. She said if you can learn, then you can do anything. As a child, the doctors told her she’d never walk. That she would need surgery. And as a young adult they said she’d be in a wheelchair by the time she was 40. Well, she’s 83 and never had surgery and never used a wheelchair. 

Doctors don’t know shit. They apparently have a very low opinion of what humans can accomplish.

She was also talking about her husband and how he’s the only man she ever wanted. They met on a blind date and he didn’t want some floozy. He wanted a good girl who was feisty and could handle a wild guy like him. And that’s what he got. They had one of those story book romance loves. They definitely had struggles, but it was true love. 

And she told me she wouldn’t change one thing.

I think that’s beautiful and we should all try to live our lives with this attitude. So, maybe we are stuck living in a fleeting life but there’s so much living to do in that natural cycle of life. Even in my grandma’s dying days, her state of mind is to live each day she’s alive.